I help organize the Rare Disease Walk for Telethon on December 5, 2026

Mission description

The Rare Disease Walk will take place on Saturday, December 5, 2026, as part of Telethon, to advance the cause of rare diseases. Each year, the Rare Disease Alliance organizes a festive walk to raise awareness about rare diseases affecting 3 million French people. Patients and family caregivers, children and adults display their disease names, making their daily struggle visible: the fight for diagnosis, treatment, medical and social support, and better quality of life.