The Rare Disease Walk will take place on Saturday, December 5, 2026, as part of Telethon, to advance the cause of rare diseases. Each year, the Rare Disease Alliance organizes a festive walk to raise awareness about rare diseases affecting 3 million French people. Patients and family caregivers, children and adults display their disease names, making their daily struggle visible: the fight for diagnosis, treatment, medical and social support, and better quality of life.
MALADIES RARES INFO SERVICES
Participate in organizing a Telethon 2026 lottery within a group of associations and possibly at neighborhood level. Tas…
Make-A-Wish® France
As a Wish Volunteer, you fulfill wishes of seriously ill children in pairs. You manage several projects simultaneously a…
France Parkinson
Act as a liaison between France Parkinson's ground actors and departmental/regional instances to develop coherent region…
DES RACINES ET DES AILES
Help organize public health awareness initiatives. Participate in campaign design, create educational games, manage comm…
